Listen to lived experience
People living with Fetal Alcohol Spectrum Disorder (FASD), their families and communities are sharing their stories to help raise awareness and increase understanding.
Community stories
Meet people living with FASD, families, carers and supporters helping to lead Red Shoes Rock.
Sophie’s story
Sophie had never been a big drinker. So, when her doctor confirmed Sophie’s pregnancy at six-and-a-half weeks, she mentioned the two to three occasions of drinking more than a couple of glasses of wine.
Karyn’s story
Karyn wanted to support the young people in her community and provide them with mentoring to help them thrive.
Gilberto’s story
Gilberto is living and functioning with Fetal Alcohol Spectrum Disorder (FASD), and he wants to tell his story.
Angelene’s story
Angelene’s son lives with Fetal Alcohol Spectrum Disorder (FASD). In this video, she talks about alcohol dependence, her son’s FASD diagnosis and her life now as a passionate FASD advocate.
Stories can change how people see FASD
FASD is often misunderstood. Lived experience stories help show the real impact of stigma, delayed diagnosis and gaps in support while also showing people’s strengths, hopes and advocacy.
Every story shared through Red Shoes Rock is shared with permission and care. We invite you to listen, learn and share these stories in ways that respect the people behind them.
Listen, Learn, & Share
Lived experience stories help build understanding when they are shared respectfully.
Frequently asked questions
Stories help people understand FASD beyond facts and statistics. They show why respectful language, diagnosis, support and systems change matter.
Stories should be shared with consent, care and clear boundaries. People decide what they want to share and how they want to be represented.
Yes, where sharing options are provided. Please use the approved links and captions, and avoid editing or reframing someone’s story without permission.
If you are living with FASD, or have lived experience as a family member, carer or support person, you can get in touch with our team here.